Working With Primary Progressive Aphasia

HA! My husband had a talk with my 16 year old a few weeks a go about my diagnosis. When I asked what he said it was that I was one of the most Intellgent person he knew,which is nice to know but now the bloom is off the rose and now she's back to her teenage self again.  

I woke up this morning with flashbacks of my cognitive break down. It was allarming and it shook me.  Luckily Ihave a friend who works with placity which is why I'm here now, talking and having conversaions Even though my new brain is working better than the other brain I still don'trust  that it will happen again. Hoping to get a  therapist who mght get this transition.   transition.That's all for now. xoxo See you round the bend. -Malke

Last weekend on Facebook I asked folks on Facebook to to tell me what their favorite word is.  Movement!   Here are the curent entries  and I hope you will add your favorite words in the comments! You could have a lot of words or just one. and I would love know what word (s) you Love! Last weekend on Facebook I asked folks on  Facebook to to tell me what their favorite word is. Mine is Movement. Here are the curent  entries and I hope you will add your favorite word to this list in the coments!  -Play/playful  -Twenty Seven -memory  -Balderdash -sesquicentennial  -Finicky  -Butter cream -Action! -Smooshed  -greay hound - Bereft  -

Because I have diffuculty understanding what people say to me I thought it might be good to to do something that would help me with understanding directions. I had already thought that learning Origami might be as good project for me so I decided to challange myself beacause to do something  that would really  challallange me but I FINALLY made my first origami piece!! My brain and me have  I have been challanged by the origami which means my brain is growing and  making more connections in my brain!! I'm not really someone who follows instrucions but in this case I was thrilled that my first piece looked so pretty!  AND I did follow the instrucions! I I think I will keep going with the Origami!

I think the biggest thing that is happening to me now  is noticing the NON-precision  in my written comunication is the that in my words are't as precise any more.  In my work. I was known to be precisice in my words and in my ideas about how we can create a system for children to understand the how,s and way's of letting elementary kids make their own understanding of math and movement and then take what they know and make something really interesting to the to their peers and to adults.  This post was for trying to get that langauage back a little bit. it. Mostly Ijust need to be more specific in this blog and maybe the more I write the better it'll be.  And, really, I CAN  proof read my own work for sure.#ican #iwill 

We did  LOT today in an hour of afasia therapy today. This was my second therapy session with my team--yestterday and last week kbothties It seems that   that is what will help me over the long term. I am working hard to develop stratigies to keep my words fresh meaning knowing how communicate better than I might be now and later when I really need it. There is also a varient  of afsia that focuses on the kind of afsia I have. Only 30%has my variant of afsia! Also I would love for folks to comment on the blog wth their best loved word!   You can tell me why or just send it through in the comments! Thank you! Thank you! xxo  I can't wait to know your favorite word/s Also , no word finding in this post! Have a great weekend! xxo

My days right now are  to get my brain in the best it can be. Today I walked, but not alot of talking since my husband was working at home today. HOWEVER... I am starting a few new therapy-like activiteis to keep my brain interested (like a little puppy..hahah! ) I am starting a course of my own to be be better about understanding what people say to me.  I n this case, I am learning how to be good at following  directions.  I can use 0rrigami (which has  lot of instrutions) .I bought some really beautiful origami paper  So I can flex my understanding while learning to to follow dirctions.    This will will likely be a big challenge for me since i'ts something I usally don''t   don't do!  I'd love to ad photos to this blog.but  will try to to make it work some how! I also have a game which was made for kids but I think it will help me with the    math, espspecically factors! That should be fun! No word finding in this ...