Working With Primary Progressive Aphasia

All the things I am noticing I notice that I have some friends in my my neiborhood who check in with with me whichI am so grateful for.   I notice that,even if I'm working on my instrutional video It's not quite not like having a job. I notice that that I can drive but onlyto go to Blooming foods and the Colledge llege mall Kroger.And Target. I notice that when I walk and with friends it is mostly about me.  I notice that I can still walk  and and talk thank goodness. I notice that I'm 'm feeling isolated but Idon't know how to mitigate this...but todayI had a  fine time with an old friends who knew mewhen I was dancing and, playing theflute!  We walke downtown and was treated with alovely Brunch and conversation. Whata  balm for me. I notice I notice that my typed words are getting  better. I notice that I'm lonely.Nowhere to go No fun things  to do.My friend Cindy took r  Acaveat: Thiings are looking better with afreind who loves towalk jus...

So, last week myspeach interns andI had some diffiulty around  tthe sematic web we use to help me find words for myself.  I need to use it so I can find the words Iwant to use since my kind of Afasia is word finding. Generally, any time I'm getting frustrated not just this context but  when I get lost in the words,litterally, I will take  step back and try and find theBIG ideas and concepts I'mworking on.Ideas.Then Ifound This! In stead of getting frustrated   found this!    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4600091/ What is Semantic Network? In a nutshell t https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4600091/ What is Semantic Network? Ignore the graphs for now since I don't know how it works. A knowledge base that represents semantic relations between concepts in a network. The model of knowledge representation is based on a directed or undirected graph consisting of vertices, which represent concepts, and Disregard the graphs, which...

This Friday I will be "teaching" the apasia interns how to make  the the two pieces of origami I've made myself by reading the instructions. T he next step will be me doing nothing but using only my words to  be a huge challenge for me given that I have already tried to practice it a couple times and I'm already wiped out! P.S . If you Make something you like  it is always fine to put a frame around it!   

HA! My husband had a talk with my 16 year old a few weeks a go about my diagnosis. When I asked what he said it was that I was one of the most Intellgent person he knew,which is nice to know but now the bloom is off the rose and now she's back to her teenage self again.  

I woke up this morning with flashbacks of my cognitive break down. It was allarming and it shook me.  Luckily Ihave a friend who works with placity which is why I'm here now, talking and having conversaions Even though my new brain is working better than the other brain I still don'trust  that it will happen again. Hoping to get a  therapist who mght get this transition.   transition.That's all for now. xoxo See you round the bend. -Malke

Last weekend on Facebook I asked folks on Facebook to to tell me what their favorite word is.  Movement!   Here are the curent entries  and I hope you will add your favorite words in the comments! You could have a lot of words or just one. and I would love know what word (s) you Love! Last weekend on Facebook I asked folks on  Facebook to to tell me what their favorite word is. Mine is Movement. Here are the curent  entries and I hope you will add your favorite word to this list in the coments!  -Play/playful  -Twenty Seven -memory  -Balderdash -sesquicentennial  -Finicky  -Butter cream -Action! -Smooshed  -greay hound - Bereft  -

Because I have diffuculty understanding what people say to me I thought it might be good to to do something that would help me with understanding directions. I had already thought that learning Origami might be as good project for me so I decided to challange myself beacause to do something  that would really  challallange me but I FINALLY made my first origami piece!! My brain and me have  I have been challanged by the origami which means my brain is growing and  making more connections in my brain!! I'm not really someone who follows instrucions but in this case I was thrilled that my first piece looked so pretty!  AND I did follow the instrucions! I I think I will keep going with the Origami!